Our aim in creating this resource is to create a centrally accessible place for the tips and strategies shared anecdotally by people affected by PCA and their families. As such, these haven’t been formally tested in research studies.

For this reason, we cannot recommend or endorse any particular tips or products included and can accept no responsibility for any adverse consequences arising from the use of information provided.

If you want to discuss whether a particular strategy may be suitable for you or your family we would encourage you to speak to an appropriate health or social care professional.