How this resource came about
PCA Tips is informed by experiences of people living with posterior cortical atrophy who have taken part in research at University College London, and who have shared their experiences at Rare Dementia Support groups.
As PCA is a rare condition, we know many people affected by it struggle to find tailored advice and strategies to help with their specific symptoms and challenges.
Over the years, many people have asked us (researchers) and their peers, about what they have tried that has helped them.
The tips shared here emphasise the creativity and resourcefulness of people with posterior cortical atrophy in managing with and adapting to their symptoms.